Did You Know?

❤ There are at least 40 different types of Congenital Heart Defects. ❤

❤ CHDS occur in almost 1% of births; this makes them the most common birth defect. ❤

❤ Nearly 40,000 babies a year are born with at least one congenital heart defect. That’s 1 in 100 live births. ❤

❤ Congenital Heart Defects are also the leading cause of birth defect-associated infant illness and death. ❤

❤ In the last decade, death rates for Congenital Heart Defects have declined by almost 30% due to advances made through research. ❤

❤ There is an estimate of about two to three million individuals living in the US with CHD. ❤

❤ Most causes of CHD are unknown; only 15-20% of cases are related to known genetic conditions. Possible related risks for developing CHDs include environmental exposure, maternal diabetes, maternal obesity, smoking and infections. ❤

❤ Also, A baby’s risk of having a CHD is increased by 3 times if the mother, father, or sibling has a CHD. ❤

❤ About 25% of babies with a CHD have a critical CHD. Infants with critical CHDs generally need surgery or other invasive procedures within their first year of life. ❤

❤ There is not cure for CHD. It is treated with surgery (or surgeries, depending on the type) and managed with medications, sometimes several and for life long use. ❤

❤ CHD individuals do face a life-long risk of health problems such as issues with growth/eating, developmental delays, difficulty with exercise, heart rhythm problems, heart failure, sudden cardiac arrest or stroke. ❤

❤ Congenital heart defects occur frequently and are often life threatening, yet research into them is grossly underfunded in relation to the prevalence of the disease. ❤

These are just a few facts of what goes into the world of Congenital Heart Defects. We will update this page with more information as time goes on. In the meantime, head over to the links we have in the Resources tab and you can do a little research yourself with what I’ve provided.